NATIONAL AND STATE RESOURCES

Important Resources: American Lung Association American Thoracic Society National Heart, Lung and Blood Institute National Institutes of Health National Organization for Rare Disorders Rare Diseases Clinical Research Network Rare Lung Diseases Consortium (RLDC) Office of Rare Diseases National Home Oxygen Patient's Association

Web Site: http://www.lungusa.org http://www.thoracic.org http://www.nhlbi.nih.gov http://www.nih.gov http://www.rarediseases.org http://rarediseasesnetwork.epi.usf.edu/ http://rarediseasesnetwork.epi.usf.edu/rldc/index.htm http://rarediseases.info.nih.gov http://www.homeoxygen.org