HELPFUL LINKS

Helpful Links  Genetics American Society of Human Genetics DNA From the Beginning Genetic Alliance Genetics Home Reference: Your Guide to Understanding Genetic Conditions Brain Brain Tumor Resource Guide Child Neurology Society National Institute of Neurological Disorders and Stroke Neurosurgery at Massachusetts General Hospital/Harvard Society for Neuroscience Washington School of Medicine – Department of Neurology Kidneys Kidney Cancer Association National Institute of Diabetes & Digestive & Kidney Diseases National Kidney Foundation PKD Foundation Heart American College of Cardiology American Heart Association Lungs American Lung Association LAM Treatment Alliance LAM Foundation LAM Action (UK) Skin / Dermatology American Academy of Dermatology Plastic Surgery Information Services Dermatology Image Atlas – Johns Hopkins University General health Research National Institutes of Health Clinical Center General Health Sites American Academy of Family Physicians American Academy of Pediatrics Familydoctor.org (health information for the whole family) Food and Drug Administration Healthlinks.net MEDLINE/PubMed (search engine) Medline Plus: Drugs, Supplements and Herbal Information National Institutes of Health The National Alliance for Hispanic Health University of Texas – Houston Medical Education Information Center U.S. National Library Of Medicine Support Family Village – Disability-Related Resources Families USA – The Voice for Health Care Consumers Federal Resource Center for Special Education National Family Caregivers Association Medic Alert Foundation United States PatientTravel.org (Charitable medical air transportation resources) School Psychology Resources Online Side By Side Inc.            (This Brookline, Massachusetts group provides supported residential,            vocational/educational, social, and therapeutic services for adults with            psychiatric or developmental disabilities to live as independently as possible            in communities of their choice.) Special Child           (Resource Foundation for Children with Challenges) Technical Assistance Alliance for Parent Centers TheArcLink.org             (Advice on home and community-based services) The National Information Center for Children and Youth with Disabilities Important Resources: American Lung Association American Thoracic Society National Heart, Lung and Blood Institute National Institutes of Health National Organization for Rare Disorders Rare Diseases Clinical Research Network Rare Lung Diseases Consortium (RLDC) Office of Rare Diseases National Home Oxygen Patient's Association